Ezra Fewster, an 8-year-old boy recently diagnosed with leukaemia, is getting a pretty incredible sparkly new school bus to roll around town in. He’s preparing for a bone marrow transplant next month. Because of his condition, Ezra has been around almost constantly at a Nottingham hospital. With the help of one of the charity-provided robots linked to his iPad, he’s able to stay in his own classroom. This unique device, equipped with glasses matching Ezra's own, allows him to interact with classmates and continue his education despite physical absence.
Ezra’s journey started seven months ago in November. He began feeling sick after each meal, which then soon resulted in reduced appetite. Then came the diagnosis of leukaemia which required immediate intervention. Luckily for Ezra, he has found a potential bone marrow donor and is set for an upcoming transplant. His profoundly grateful parents would like to see better awareness about the need for more stem cell donors.
"Our goal now is to really drive that register and help other families because we've been fortunate that Ezra hasn't had to wait," said Mr. Fewster.
The robot still gives Ezra full control over his movements through his iPad, however. The robot has an animated head that can change coloration to indicate it’s about to begin playing. Or, it can change color to show that it doesn’t want to play. This technology enables him to be part of classroom discussions and extracurricular activities like rugby and football matches, even from his hospital ward.
"The robot is connected to his iPad. Ezra has full control of the robot, he can change the colour on the head – if it turns green, it means he wants to answer a question, or, if it turns blue, it means he's not really feeling up to talking," explained Mr. Fewster.
Ezra’s parents are pushing to raise awareness about the need for stem cell donors. They note that while many people request donor kits, only half return them, underlining the need for commitment in such vital processes.
"Loads of people will request a [donor] kit to join the register, but only 50% of them will return it," noted Mr. Fewster.
In order to help support Ezra and his family through this difficult time, a fundraising page created by the family has already raised over £56,000. She said the money has already helped charities and transformed hospital wards, adding that giving back to the community is what her family would have wanted.
"We're using the money currently to help the charities and to help the ward out with stuff they need and pay it forward," Mr. Fewster shared.
In May, Ezra's football coach plans to run 65 miles from Sixfields Stadium to the Emirates Stadium to further support the cause and raise awareness.